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15 Replies Last post: Dec 5, 2007 5:16 PM by welshtroll   1 2 Previous Next
Click to view idorunrun's profile Expert 41 posts since
May 15, 2006
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Dec 5, 2007 2:48 PM

meary's thread got me to thinking...keeping my kids away from my dad

my 78 year old father has Alzheimer?s and is rapidly going downhill. my parents live 1000 miles away. we, as a family, spent almost a week with them last january. i spent over a week at home when my dad was in the hospital in april. i've spent pretty much all my vacation time for 2007 going to see my parents due to various situations with my dad.

my kids are not little - they are 14 and almost 17. when we were there in january, he was mostly having good days. we got iced in and spent a lot of time playing games and sitting around talking. my dad's illness in april really set him back and i doubt that he will ever be back to the point he was in january - they probably saw him at his best.

i am planning on going back for a visit in january - just me. i really don't want my kids to see him how he is now. he's at home - only because my mom refuses to face his illness and see it for what it is. so their home situation is not good - i won't actually be staying with them in all liklihood. he's dirty - rarely bathes anymore. his emotional state is very childlike. he needs surgery to remove an enlarged prostate but cannot withstand the surgery so he has a urine bag and it constantly is leaking or busting.

trust me - it is embarassing (and heartbreaking) that my mom has allowed the situation to get the way it is - but my sister and i have not really been able to get control away from her. but that's a different story.

so my question is - am i right in planning my visits to just be me? i feel like i'm doing my kids a favor by allowing them to remember my dad as he was - not as he is becoming. when we were there in january, i cautioned them that it could be the last time they saw him - his health is so fragile.

my youngest son has expressed a desire to see him. of course i can't be certain, but it is unlikely that my dad will even know who he is. as an adult it is painful to know that he doesn't know me - i just don't see how my son is not going to be hurt/confused by that. my 17 year old says he'd rather not see him like he is.

i've been struggling with this decision but meary's post really made me wonder if i am really doing my child any favors by keeping him away. we've lived 1000 miles apart for the last 9 years - so it isn't like they've been super super close growing up - although they have a great relationship with my parents.

any input?
Click to view Longrun4fun007's profile Legend 247 posts since
Feb 9, 2006
1. Dec 5, 2007 2:55 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
Have you not heard of second-hand Alzheimer?s?

------------------
Sure, a woman can fake an ******, but it takes a man to fake a whole relationship.
Click to view maryk071's profile Legend 211 posts since
Dec 5, 2002
2. Dec 5, 2007 3:02 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
I think if your son wants to see him, it's ok.

My grandma didn't recognise people for at least 5 years before she passed away (I was 29). Visiting her didn't erase my memories of her before she started slipping. It was sad, yes, but I think visits were very good for my aunt and the lady who helped take care of her.

The visit would probably be good for your mom.

It also helped me to realize how important Alzheimer's research is, and to take good care of myself. I was surprised at how many people don't drink juice in the other thread, as research suggests it might prevent Alzheimers.
Click to view Iontach's profile Legend 1,522 posts since
Dec 14, 2007
3. Dec 5, 2007 3:06 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
They're 14 and 17. Ask them.
Click to view tklep's profile Pro 94 posts since
Dec 14, 2007
4. Dec 5, 2007 3:18 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
My grandmother was diagnosed with Alzheimer's when I was 14. I was 22 when she finally died. I had not seen her in over a year. at the very end it was very difficult to visit with her bcz she was so different than what I knew. she did not know I existed, thought I was my mother (who I look like but who had also been dead for 15 years.) It was sort of creepy.

But if your son wants to visit him, you should let him. It is most likely going to be one of the last times (if not the last time.) Bcz I know if the last time I was allowed to see my grandma had been when she was in a good stage, I would have regretted that (and it would have been about 3 years before she eventually died.) At 14 he is old enough to understand. But you should also prepare him for how your dad will be, how he probably won't recongize him, etc.
Click to view nameless4this's profile Amateur 26 posts since
Aug 29, 2002
5. Dec 5, 2007 3:21 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
Maybe he won't know them but htey will know him.
Maybe they can say goodbye or just have a last memory of him. Remember theree two sides of this not just what your dad sees but what your kids see too. If they want to go let them if not don't make them.
Click to view jek302's profile Expert 57 posts since
Sep 6, 2003
6. Dec 5, 2007 3:25 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
My son, though much younger at the time, spent time with both my father and his FIL at the very end of their lives. (And, no, those situations weren't always very easy to stomach, in a number of ways.) I always tried to let him know as specifically as possible what to expect...and found him to be unexpectedly comfortable and comforting.

I agree that, given their ages, it might be best to talk with your children and respect their wishes either way, if possible.
Click to view AmericanIdiot's profile Pro 86 posts since
Dec 24, 2005
7. Dec 5, 2007 3:28 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
They are old enough to make that kind of decision. If they have desire, tell them what to expect and let them see him.

Does your mom not have a homecare aide come in and take care of the necessities like bathing him and keeping things sanitary? I would get family in on it and overide her decision if she is refusing it.
Click to view Suesquatch's profile Legend 205 posts since
Dec 14, 2007
8. Dec 5, 2007 3:29 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
{{{idorunrun, and her mom and dad}}}

idorunrun, I know this is hard to believe, but your mother is doing the right thing by keeping him at home.

One of the things I saw working in a nursing home was the utter confusion and despair of men with Alzheimer's. They missed their wives and wanted to go home. They didn't know where they were - sometimes they thought they were in jail, or being punished - and given that they had no capacity to retain new information - in short, to make memories - they were angry and frightened.

And they didn't need no stinkin' baths, either!

It's hard on everyone. But I really believe that if there is a way to keep a loved one at home that's where they belong.

As to your sons - it's up to them, I think. But one thing I always hear that I'm sick of is that it's the same person. No, it is not. That person has died a terrible, slow death and this IS a stranger in a lot of ways.

As to being embarrassed - fukk anyone who doesn't like it. It's your father and her husband. Fukk 'em if they can't take a joke.

Your mom's doing a good thing.

Click to view Iontach's profile Legend 1,522 posts since
Dec 14, 2007
9. Dec 5, 2007 3:35 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
quote:<HR>Originally posted by Suesquatch:
idorunrun, I know this is hard to believe, but your mother is doing the right thing by keeping him at home.<HR>


Um. Sorry, but without knowing more, I can't agree. My mother's quality of life and care in the home was much greater than I could have provided, and after she shattered the second hip in eight days, one person simply couldn't do it alone. There comes a time when someone has to be alert 24 hours a day, and one person can't do that.

Is it possible to keep a dementing person at home? Absolutely, in some cases, but without knowing about whether there's respite care or nursing care, I can't say home is always better. I agree there's some awful residential places out there (I know, I vetted them), but some places are simply wonderful.
Click to view Suesquatch's profile Legend 205 posts since
Dec 14, 2007
10. Dec 5, 2007 3:44 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
iontach, he isn't wandering and is better off at home. He is also not bedridden or incapable of performing the crucial "acitivities of daily living."

As to nursing homes providing better care - some do, provided one has the money. Were he to be placed here his wife would lose her home and savings and his care would consist of regular nappie changes and a once-a-week shower, probably kicking the aides and screaming all the way.
Click to view wkm99's profile Legend 407 posts since
Jun 30, 2006
12. Dec 5, 2007 4:00 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
Count me as another as agreeing that since your children are grown, explain the situation thoroughly, what conditions to expect such as no bathing, unsanitary conditions, ordor, urine bag, dementia-Alzheimer's, not recognizing loved ones, all of it. Next, let your 14 year old decide whether or not he wants to accompany you for this visit. Your 17 year old doesn't want to visit and wants to remember the better memories. I would respect his wishes on that.
This is what I would do, {{{idorunrun & family}}}.
Click to view Suesquatch's profile Legend 205 posts since
Dec 14, 2007
13. Dec 5, 2007 4:00 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
Then iontach's right and you need to get control away from her.

Good luck.

Click to view 4boysmom's profile Legend 1,307 posts since
Dec 10, 2007
14. Dec 5, 2007 4:07 PM in response to: idorunrun
Re: meary's thread got me to thinking...keeping my kids away from my dad
Your kids are old enough. Explain what your visit will involve. If they are game, then let them go with you.

We had a similar thing with my Grandpa. A year ago Thanksgiving weekend Grandpa got up in the middle of the night and on his way to the bathroom he had a stroke. Later that night, Grandma got up to go to the bathroom and tripped over him. After several months in a nursing home, Grandma insisted he come home. And against the wishes of the entire family, he did come home. The home situation was terrible. They did have home care nurses come in, but Grandma couldn't leave Grandpa home alone. In July, he fell and broke his hip (refused to use his walker). He's back in a nursing home. He's had more strokes since then. He'll never come home, even though Grandma is doing everything she can. It is hard on her. She spends all day, everyday, at the nursing home...

All the grandkids are grown. There are lots of young great-grandkids. Oldest is 15, youngest 2. We did have Thanksgiving at the nursing home.

Grandpa is much like an 18-24mo. Can't (won't?) talk. Points when he wants something. He does use silverware but needs food cut. It's very hard for everyone to see.

The grandkids took it in stride. This isn't Grandpa, it's a shell of who he used to be. The great-grandkids pretty much avoided Grandpa. They didn't know how to deal with him. We're not sure how much Grandpa understands anyway.