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5 Replies Last post: Nov 8, 2007 10:53 AM by jrich7970  
Click to view monilark's profile Pro 146 posts since
Jan 12, 2005
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Nov 7, 2007 2:29 PM

Running and ALS

I've been following the blog of someone who has had ALS for the past three years. I stumbled upon the blog shortly after the author's diagnosis and have been a regular reader ever since.

In learning more about the disease and reading about the effects it has had on my "friend", I truly cannot think of a worse way to die. A comment recently left on the blog led me to do some internet research, and while doing that I was reminded that it seems that a surprising number of ALS patients were former runners.

The way it appears is that, clearly, not all runners get ALS, but a surprising number of ALS patients were former, avid runners.

The author of the blog that I read was a runner, and, in fact, first thought something was wrong when one of his legs seemed "heavy" during his runs. In surfing the net today, I read about like Darcy Wakefield, who wrote a memoir called, "I Remember Running: The Year I Got Everything I Ever Wanted - and ALS". But there are lots of others - young runners (not swimmers, not tennis players, not cyclists) who get this horrible disease.

So far, science/medicine doesn't acknowledge a connection.

Anyone else give any thought to this or know anyone going through a battle with ALS?
Click to view rlemert's profile Legend 250 posts since
Dec 14, 2007
1. Nov 7, 2007 4:55 PM in response to: monilark
Re: Running and ALS
Two years ago (I believe) one of the IronMan participants was an early-stage ALS patient who vowed that he was going to complete the race "if he had to roll across the finish line." He completed the race, and on a whim actually rolled across the finish line.

The next year he was too ill to compete. (They showed him on TV, and the disease had not been kind to him.) Another competitor, though, had been inspired by his story and got permission from him to run on his behalf. When he finished, he too rolled across the finish line. (There might have even been an ALS charity team competing, because I seem to remember from the TV coverage that several finishers rolled.)

My memory may be faulty on this because it's based on my recollection of the hour-long tv coverage that's presented several weeks after-the-fact. Even so, I think this would be a neat tradition for the charity to continue.
Click to view callalily's profile Expert 40 posts since
Sep 30, 2007
3. Nov 7, 2007 8:25 PM in response to: monilark
Re: Running and ALS
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4. Nov 8, 2007 10:48 AM in response to: monilark
Re: Running and ALS
I have never heard of this disease. Is it hereditary or something you get by running for so long? Wow, How scary. I don't want to get a disease from running.
Click to view jrich7970's profile Legend 238 posts since
Oct 1, 2007
5. Dec 26, 2007 7:22 AM in response to: monilark
Re: Running and ALS
quote:<HR>Originally posted by hopper31:
I have never heard of this disease. Is it hereditary or something you get by running for so long? Wow, How scary. I don't want to get a disease from running. <HR>


It has to be the most ridiculous coincidence on Earth. Running does not give you ALS. Sheesh. The is a small percentage of cases that appear to be hereditary.

By the way, Amyotrphic Lateral Sclerosis is more commonly referred to as Lou Gherig's Disease.

Wow. Another athlete.

As for ALS being a horrible way to die. Nope. ALS is a horrible way to live. Dying is relief.



http://This message has been edited by TechTee (edited Nov-08-2007).